Cystic Fibrosis

INFECTION CONTROL POLICY

Cystic fibrosis  is the most common, fatal genetic disease affecting Canadian children and young adults. There is no cure for cystic fibrosis. Cystic fibrosis is a multi-organ disease, primarily affecting the lungs and digestive system. A build-up of thick mucus in the lungs causes severe breathing problems. It may be difficult to clear bacteria from the lungs, leading to cycles of infection and inflammation, which damage the delicate lung tissues.

Thick mucus also blocks the ducts of the pancreas, preventing enzymes from reaching the intestines to digest food. People with CF must consume a large amount of artificial enzymes (average 20 pills a day) with every meal and snack, to help digest and absorb adequate nutrition from food.

Cystic fibrosis is a very complex disease, but you will find plenty of information on this site to help answer your questions.

http://www.lhsc.on.ca/About_Us/CF/

London Cystic Fibrosis Clinic History by Liz Hunter-Bere, RN

Dr. Ecclestone was the first doctor who began seeing a few (total of 4) CF patients in the 1960′s. He stayed with the clinic until 1997 and had to leave due to illness. Prior to the establishment of the London clinic most London area children were seen by Dr. Crozier at The Hospital for Sick Children, Toronto. Among others, the Dowden, Ivey & Mader families were instrumental in getting the London Chapter established.

The London Cystic Fibrosis team was assembled in 1984 when Grace Bradish was hired as clinic nurse. I took over her part-time position in 1986 and stayed with the clinic until Dec. 2000. Paediatric team members who worked along with the doctor and nurse included a physiotherapist, dietitian, social worker, pharmacist, psychologist and pulmonary function technologist. A separate Adult clinic (18 years and older) was established in 1997 under Dr. Nigel Patterson. When I retired in 2000 we had approx. 100 children and 50 adults on our clinic list. Dr. Brian Lyttle has been Paediatric Clinic Director since 1997.

My replacement was Patrice Kean, RN.

Liz Hunter-Bere

Patrice Kean, RN, worked on the Patient Data Registry and the Newborn Screening Program.

Jennifer Itterman, RN replaced Patrice in the Paeds Clinic and Tracy Gooyers in the Adult Clinic.

Interim Paeds nurses have been Erin Fleischer, RN, and Monica Dawe, RN.

In 2011, Adult Clinic Dr. Nigel Paterson retired  and was replaced by Dr. Heather Racz  and Dr. Jim Lewis. Paeds Clinic is led by Dr. April Price and Dr. Brian Lyttle.

Meet the Team

Quick Links

Paediatrics

Adults

Paediatrics

Contact:

Jennifer Itterman – Paediatric Nurse Case Manager
Telephone: 519-685-8500 Extension 52692

jennifer.itterman@lhsc.on.ca

CF Program Administrative Support
Telephone: 519-685-8500 Extension 52032

Fax: 519-685-8130

Team Members:

Dr. April Price Paediatric Respirologist, CF Clinic Director
Dr. Brian Lyttle Paediatric Respirologist
Jennifer Itterman
Paediatric Nurse Case Manager
Valerie Lammers Dietitian
Natasha Nunes Physiotherapist
Janet Adamson Social Work
Stephanie Ho Genetic Counsellor
Sherrilynn Sagemen Clinic Nurse
Julie Hendriksen Clinic Administrative Support
Voula Ntanos Administrative Support to Dr Price
Administrative Support to Jennifer

 

Adults

Contact:

Tracy Gooyers RN – Adult Nurse Case Manager
Telephone: 519-685-8500 Extension 55186

tracy.gooyers@lhsc.on.ca

Sharon Hughes – Adult Administrative Support
Telephone: 519-685-8500 Extension 52032

sharon.hughes@lhsc.on.ca

Fax: 519-685-8130

Team Members:

Dr. James Lewis Respirologist, Adult CF Clinic Director
Dr. Heather Racz Respirologist
Tracy Gooyers Adult Nurse Case Manager
Lynn Sinclair
Dietitian
Connie Shrubsole Social Work
Heather Roberts Physiotherapist
Cathy Ede Administrative Support to Dr. Lewis